Unfortunately, there is no cure for Friedreich’s Ataxia yet. I will be disabled for the rest of my life. Obvious, right? Well it took me a long time to accept that I will be a ‘Wheelchair Boy’ forever. Surely that’s understandable though. It is a bit of a change going from being able to walk around and playing football to having to use a wheelchair permanently. So, you’d think that people who deal with disability on a daily basis like the social services would understand that concept.
Apparently not. There have been a few examples recently where people have failed to grasp that this condition will be with me forever. Take my care package. I require 24/7 support, which I got at University, and have been getting at home. All of a sudden, those in charge of the money have said that I’m only entitled to 9 hours of care. They clearly think a miracle cure for Friedreich’s Ataxia has been discovered meaning that I am now able to wash, dress, cook and clean without any assistance. Although it has now been cleared up, this ridiculous error means that my carers (I prefer to call them PA’s) will have to wait until next month to get paid.
My standing hoist again illustrates that people have difficulties comprehending the idea of someone having a permanent disability. The Occupational Therapist has to come and check I still need it every 3 months. As if in-between the visits, I started to become ‘normal’ and no longer used the standing hoist. Even in some parallel universe where I got better and began walking, why would I keep hold of equipment that in this imaginary world would now be obsolete? Just don’t make sense.
So, why do various strings of the establishment keep checking if I’m still disabled? Although I criticise them a lot in posts, people who work in them kind of jobs are not plain stupid. They are merely working on behalf of the government and clearly understand that disability doesn’t go away overnight. Instead, they are checking if I’m still alive (or should I say hoping that I’m dead). Like I discussed in my previous post, the government want to save money and disabled people must be such an unneeded drain on the economy. Killing the handicapped wouldn’t work and would result in mass uproar (Hitler tried) so the next best thing is to wait with baited breath for natural causes.
Now, before you all think, “he’s a bit touchy and insecure. Think’s that the government are trying to kill him”. I’m not saying that. I’m saying that deep down they want disabled people exterminated because it would make their life easier. Now, I’ve discussed my logical theory with my friend and he replied that he “wishes it wasn’t true but it probably is. Makes perfect sense” I know it’s a bold statement but I reckon the thought has crossed George Osbourne’s mind. Think about it. Not paying out benefits + not having to make adaptions such as ramps + not having to fork out for equipment + fewer NHS costs = would go a long way in helping to wipe out the deficit.
Also, you wouldn’t have to listen to whiney ‘Wheelchair Boy’.
Bye for now!